Community Governance

The project is guided by a local Aboriginal Cultural Advisory Group (ACAG) that includes Elders, community members and local Aboriginal health service providers. Elders who are involved and guide the research and project group, include Uncle Neville Sampson and Aunty Audrey Trindall. The ACAG and research team, work together to make decisions about engagement, research and specifically how:

We gather information from people
We share knowledge and learn from community and people
We share research learnings with people in the community, our partners and others more broadly

 

Research Sponsorship

This Project is supported by the Hunter Stroke Service and research funds from Stroke Foundation and Medical Research Future Funds Cardiovascular Health Mission 2021 to co-design a culturally appropriate yarning tool to strengthen Aboriginal and/or Torres Strait Islander people’s determined stroke recovery pathways.

We are co-designing this tool with (i) community, (ii) those with lived stroke experience and (iii) services in community about other issues to consider in the stroke recovery journey.

We will take the tool built with the community and work with people who have had a stroke, in a non-randomised, controlled trial to understand the benefits and experience of using this tool after a stroke.

We plan to run a national research trial in the future.

Phase I > Learn More

During Phase I we yarned with people who have had a stroke, their families and with health workers who provide services to people who have had a stroke. From these yarns we heard about the importance of family being involved throughout the recovery journey. The need for a culturally safe recovery journey and the importance of support throughout the journey.

 

During Phase I we yarned with people who have had a stroke, their families and with health workers who provide services to people who have had a stroke. From these yarns we heard about the importance of family being involved throughout the recovery journey. The need for a culturally safe recovery journey and the importance of support throughout the journey.

 

Phase II > Learn More

Phase II will see the yarning tool built by the community then used by people with stroke to understand how it makes a difference to people’s spirit, well-being and mood.

Phase II will see the yarning tool built by the community then used by people with stroke to understand how it makes a difference to people’s spirit, well-being and mood.

Phase III > Learn More

Phase III will see us work with other communities in other states to adapt the yarning tool built in Phase I and tested in Phase II to meet the needs of their community. We will then run another research study to see how well the yarning tool helps Aboriginal people and/or Torres Strait Islander people living with stroke across Australia.

Phase III will see us work with other communities in other states to adapt the yarning tool built in Phase I and tested in Phase II to meet the needs of their community. We will then run another research study to see how well the yarning tool helps Aboriginal people and/or Torres Strait Islander people living with stroke across Australia.

Relationships and partnerships established during this time have been instrumental in supporting new relationships between the Yarning up After Stroke team and their many partners who include:

Members of Collaborative Research Team named on the Medical Research Future Funds Cardiovascular Health Mission 2021


Human Research Ethics Details

Hunter New England Human Research Ethics Committee:

Hunter New England Human Research Ethics Committee 2020/ETH02782

Aboriginal Health & Medical Research Council Ethics Committee: The Chairperson, Aboriginal Health & Medical Research Council Ethics Committee, 35 Harvey Street, Little Bay, NSW, 2012, ethics@ahmrc.org.au

 

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